Category Archives: Living with LAM

Information and stories about living with LAM (lymphangioleiomyomatosis) based on Sarah’s personal experience with this rare, chronic lung disease.

Left image: pink flowers on a tree branch; right image: hand-written words that say: I am grateful to have this moment with a hand-drawn flower
Gratitude and chronic illness

This year, I learned the power of gratitude. It started as a technique to help [...]

5 Comments

20
Oct
A woman sitting on a bench in front of a very blue lake and some mountains in New Zealand
11 things I wish I knew 11 years ago

I was diagnosed with LAM 11 years ago. It was a tough day and an [...]

7 Comments

17
Jun
4 pictures of women with LAM and their loved ones. WWLAM 2021 logo in right corner.
WWLAM 2021: Empowering Patient Perspectives

31
May
Two pictures of Susan, a woman with LAM. At left, Sarah stands flanked by her two adult sons. At right, a selfie shows Susan smiling in front of mountains. The WWLAM 2021 logo is overlaid.
WWLAM 2021: Susan

For Worldwide LAM Awareness Month (WWLAM) 2021, we’re sharing stories from women who were diagnosed [...]

31
May
Two pictures of Sarah, a woman with LAM. At left, she sits at the beach looking at the ocean. At right, is a close up of her holding goggles in front of the ocean and a pastel sky. The WWLAM 2021 logo is overlaid.
WWLAM 2021: Sarah

For Worldwide LAM Awareness Month (WWLAM) 2021, we’re sharing stories from women who were diagnosed [...]

31
May
Two pictures of Alex, a woman with LAM. At left, she stands, wearing oxygen, with her bike. At right, Alex stands holding her right arm high up. The WWLAM 2021 logo is overlaid.
WWLAM 2021: Alex

For Worldwide LAM Awareness Month (WWLAM) 2021, we’re sharing stories from women who were diagnosed [...]

1 Comments

31
May
Two pictures of Meagan, a woman with LAM. At left, Meagan sits with her husband and two daughters. At right, Meagan is with one of her daughters at a playground. The WWLAM 2021 logo is overlaid.
WWLAM 2021: Meagan

For Worldwide LAM Awareness Month (WWLAM) 2021, we’re sharing stories from women who were diagnosed [...]

1 Comments

31
May
Left image: woman with blonde hair tied back wearing sunglasses holding arms in the air on a mountain ledge; Right image: close up of a woman with short blonde hair eying a microphone
The sound of life with LAM

I met Sina in 2016 in Berlin. She was the first woman with LAM I [...]

15
Feb
Pages of a book about women with LAM
New book of portraits and profiles of women with LAM

I’m excited to share my participation in the new book Breathe, Just Breathe. Like our [...]

24
Jun
WWLAM 2020 logo reads: HOPE our global connection worldwide LAM awareness month June 2020
Thriving with LAM: stories of hope and resilience

June has always been a time to reflect on what having the rare lung disease, [...]

1 Comments

31
May